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New self-help groups for newly diagnosed people

Self-help group7.jpgHave you been diagnosed with MS within the past two to five years? If so, you probably have a lot of questions and concerns. Or, you may be feeling so overwhelmed by the diagnosis that you aren't sure what kinds of questions to ask. We are pleased to offer two new self-help groups to give you the information and support you need to live more comfortably and confidently with this change in your life.

Moving On 

Join us at our office in Center City Philadelphia to gain peer support and receive information about the latest research, treatments, and programs and services available for people living with MS.
  • Kick-off meeting: Wednesday, July 24 from 6:30 to 8 p.m.
  • Regular meetings: The fourth Wednesday of each month from 6 to 7:30 p.m.
  • Any questions? Contact the group leader and MS Navigator, Evan Marcus

MS 101 Telephone Support Group

This educational series and support group offers you the opportunity to participate from the comfort of your own home. Topics include symptoms and treatment options, fatigue management, and effects on the family.
  • Kick-off meeting: Thursday, September 5 from 7 to 8 p.m.
  • Regular meetings: The first Thursday of each month from 7 to 8 p.m. 
  • Presenter: Lamar Freed, PsyD      
  • Any questions? Contact Pat Thieringer, Community Outreach Manager.          

For more information about self-help groups, click here.

            

Save the date for The Right Notes 2013 

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The National MS Society and the Somers Point Jazz Society invite you to The Right Notes: Wine Tasting and Jazz Event on Thursday, October 17. Join us for an evening of great music, superb wines and philanthropy. Enjoy 'The Latin Side of Jazz', a celebration of Latin music's influence on jazz since the 1940's, presented by renowned tenor saxophonist Dr. Michael Pedicin and his quartet.

 
 

Don't miss City to Shore 2013

New-low-res---peace.jpgRegistration for the Bike MS: City to Shore Ride on September 28 and 29 is filling up fast! Don't miss what Bicycling Magazine has called the "Best Cycling Getaway in New Jersey". Register now and be there as we ride through some of the most scenic routes in New Jersey to make a difference in the fight against MS.

Don't want to ride but still want to be part of the fun? Sign up to volunteer during the summer or ride weekend. There are a variety of jobs available and all ages and groups are welcome.

 

New recordings available on Podbean

Check out the new recordings available on our Podbean channel, including all nine presentations from the 2013 LINKS Teleconference Series that took place in April and May 2013. The aim of this series was to "link" people living with MS with information and tips on how to maintain quality of life in the years ahead.

The presentation from the Improving Independence in Progressive MS Teleconference that took place on June 12 provides information about how to navigate the world of assistive technology and ways to modify your environment, at home and at work, to optimize independence.

        

In the News 

Why America can never give up on medical research

This article appeared in The Week on July 12. In America we spend roughly $140 billion on medical research every year. One-third of that is from the federal government. Over half - 54 percent - comes from industry, and nearly all the rest comes from universities, philanthropic foundations, independent research institutions, and what most statisticians labels imply as “Other.” The contributions of these voluntary, nongovernment, and nonprofit institutions is calculated, then shrugged off, as people return to talking about the worth of federal NIH funding or deride the evils of pharmaceutical companies. READ MORE.

In other news... 

> Small Study Suggests Possible Benefit for Skin Patch to Reduce Immune Activity in Multiple Sclerosis

> National MS Society Commits $2.5M for Research by Pediatric MS Network -- 9 pediatric MS centers across the country will benefit

> Researchers Co-Funded by the Society Pinpoint Genetic Differences Between African-Americans and Northern Europeans with MS


Thanks for making Walk MS 2013 a success!

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Thanks to all of the participants, volunteers and supporters who made Walk MS 2013 a success. This event would not have been possible without your commitment. Check out photos from the event and our new thank you video.

Walk MS 2014 will take place on April 27, May 3 and May 4. We hope to see you there!

 
 

Events

July 22 - Northampton County Community Outreach Day

Staff will be at St. Luke's Neurology Associates in Bethlehem from noon to 8 p.m. to answer your questions about MS and the latest research, discuss the programs and services available in your community, and provide assistance with referrals to physicians, allied health professionals and other service agencies. Click here for more information.

July 29 - Gloucester County Community Outreach Day

Schedule an appointment to meet with a member of our services team at Penn Therapy and Fitness in Woodbury Heights, N.J. between 11 a.m. and 7 p.m. Learn more about MS and the latest research and find out about MS programs and services in your community. Click here for more information.

August 13 - Can Do Multiple Sclerosis Webinar: Managing Speech, Language and Cognitive Challenges

This web-based seminar from Can Do MS takes place from 8 to 9 p.m. Receive insights from MS experts and gain valuable knowledge about MS. Click here for more information.

September 21 and 22 - Bike MS: Bike to the Bay

This year, our friends at the Delaware Chapter are hosting the 30th annual Bike to the Bay event. This two-day cycling adventure will take you through the quaint, rural towns of southern Delaware all the way to the coastline. Learn more.  

For more upcoming events, please visit the chapter calendar.

 
Support the 2013 MS Leaders Circle

The MS Leaders Circle is composed of upwardly mobile business professionals in the greater Philadelphia region who want to make a difference in their community by undertaking a fundraising campaign to benefit local people living with MS. You can show your support by participating in one of their upcoming fundraising events, including a designer handbag bingo party in Feasterville, Pa. on July 26, a guest bartending night in Philadelphia on August 14, and a family-friendly event at the Adventure Aquarium in Camden, N.J. on August 28. Click here for details.

 

Quick Links

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The National MS Society does not endorse or recommend products, services or manufacturers. The National MS Society assumes no liability whatsoever for the use or contents of any product or service mentioned. The National MS Society is not responsible for the contents of any information referenced by or linked to this email or our website.

 

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National MS Society, Greater Delaware Valley Chapter
30 S. 17th St., Suite 800, Philadelphia, PA 19103




Early and ongoing treatment with an FDA-approved therapy can make a difference for people with multiple sclerosis. Learn about your options by talking to your health care professional and contacting the National MS Society at http://main.nationalmssociety.org/ or 1-800-FIGHT-MS (344-4867).

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National Multiple Sclerosis Society
733 Third Avenue
New York, New York 10017

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