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Save the date for the next Young with MS Happy Hour on September 18
If you’re in your 20s or 30s, kick back with us at one of Philly's favorite
spots, The Field House, near the world famous Reading Terminal.
Meet other people your age who are living with MS at this casual event.
Arrive at 6 p.m. to hear job tips from a human resources manager, including job search and employment guidance. If you can't
make it by 6 p.m., join us after 6:45 p.m. for happy hour. You can bring one buddy, but everyone must be 21
or older. Click here to save your spot.
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Don't miss MS Service Day on October 26
The next MS Service Day is taking place on Saturday, October 26 in the Camden and Gloucester counties of southern New Jersey. Click here for information about how to apply for help with yard work, cleaning gutters, power washing, painting, or other projects. The deadline to submit your application and photos of your project is Saturday, September 14. If you have any questions, please contact Pat Thieringer
or Mollie Burns at (215) 271-1500.
We
are looking for additional volunteers to make this day a success. If you or someone you know is interested in volunteering, click here for more information and to sign up.
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Research Studies
Kessler Foundation - MS and Employment
Are
you gainfully employed? Are you thinking of leaving the workforce or feeling as
if you need to cut back hours because of your MS? If
so, researchers at the Kessler Foundation want to hear from you. They are interested in learning more about the
factors associated with employment decisions in MS.
Individuals who are
gainfully employed OR those considering
leaving the workforce or feeling as if they need to cut back on hours are
eligible to participate. All
participants will complete an online survey asking about their work status and
various factors thought to be related to managing one’s MS and ability to
work. Participants will be compensated for their participation.
To
be eligible, participants must be:
- between the ages of 20 and 64
- diagnosed with definite MS
- have
no other neurological illness
For more information,
please contact Juliane Armstrong, B.S. (973-324-8457, jarmstrong@kesslerfoundation.org) or Lauren
Strober, Ph.D. (973-324-8459, lstrober@kesslerfoundation.org). Click here to download the flyer (pdf).
Ryerson University - Dating Among Single Women with MS
Ryerson
University is conducting a study to understand the impact of MS in the formation and quality of dating
relationships among single women.
To
be eligible, participants must:
- be 20 to 40 years-of-age or 50 to 65 years-of-age
- have been diagnosed with MS for at least 6 months
- self-identify as presently single
- be fluent in English
- be female
Participants can expect:
- a short phone call to make sure that you are eligible
- to complete a 45-60 minute paper survey in their own home at their convenience
about how MS has impacted their dating experiences, beliefs about
relationships, and self-image
For more information, call 1-(800)-964-1437 or email MSdating@psych.ryerson.ca. You
will receive a $15 gift card for your time. All inquiries will be kept confidential. Click here to download the flyer (pdf).
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National Disability Institute (NDI) Financial Webinar Series
The NDI is hosting a six part monthly webinar series focusing on important financial wellness topics for persons with disabilities. The second webinar took place on August 21 and was titled 'Your Home - Owning, Refinancing and Modifying'. The recording and live captioning transcript for this webinar will be available on their website soon.
Click here to learn about the upcoming webinars in this series, including 'Social Security Disability Insurance - The Impact of Work on Benefits' from 3 to 4:30 p.m. on Wednesday, September 18.
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In the News
> MS Cognitive Impairment
Rates Lower Than Previously Reported
> A Limit on Consumer Costs is Delayed in Health Care Law
> MS Hope from 'Off-the-Shelf' Drugs
> MS
Trial Alert: Researchers in California, Colorado, New Mexico and
Pennsylvania Recruiting Women with Progressive or Relapsing MS for Study
of Estriol to Improve Cognition
> MS Trial Alert: Abili-T Study of Tcelna Immunotherapy Recruiting 180 People with Secondary-Progressive MS in U.S. and Canada
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Follow us online
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Events
September 3, 10 and 17 - Newly Diagnosed Teleconference Series If you've recently been given a diagnosis of MS, you probably have a lot of questions and concerns.
Or, you may be feeling so overwhelmed by the diagnosis that you aren’t
sure what kinds of questions to ask. Sign up for one or more of the teleconferences in this series to hear useful information directly from
experts in the field. Learn more.
September 5 - MS 101 Telephone Support Group If
you're newly diagnosed, join us from the comfort of your own home for
this educational series and support group. Topics include symptoms and
treatment options, fatigue management and effects on the family. Led by
Lamar Freed, PsyD, the group will meet on the first Thursday of each
month from 7 to 8 p.m. Learn more.
September 7 - How to Communicate Effectively with your Doctor about Managing your MS You and a guest are invited to the Ventnor Branch Library from
10 a.m. to 12 p.m. to learn how to make the most of your doctor's
appointments. Dr. Jaime Imitola will address how to best discuss all
aspects of managing your MS, including treatment options, symptom
management, and even employment. Learn more.
September 21 and 22 - Bike MS: Bike to the Bay The
Delaware Chapter's 30th annual Bike to the Bay event is a two-day
cycling adventure that will take you through some of the most scenic
paths in the state all the way to the coastline. Learn more.
September 25 - Ask the Employment Specialist: Telephone Question and Answer Session If
you have questions about employment and MS, join us from 12 to 1 p.m.
to hear from two National MS Society employment specialists. This is a
great way to learn about workplace disclosure, social security disability benefits, accommodations, returning to work, and more. Learn more.
September 28 and 29 - Bike MS: City to Shore Ride 7,000
cyclists are gearing up to ride through some of the most picturesque
routes in New Jersey to make a difference in the fight against MS. Get
involved as a cyclist or volunteer at MSCycling.org.
October 12 - Progressive MS: The Road Ahead If
you're living with Progressive MS, join us at DeSales University in Center Valley, PA from 9:30 a.m. to 2:30 p.m. for this educational event and resource fair. MS experts will discuss 'Strengthening Family Resilience' and 'Research Avenues for Progressive MS'. Learn more.
October
17 - The Right Notes: Wine Tasting and Jazz Event Don't
miss The Right Notes, presented by the National MS Society and the Somers Point
Jazz Society. Reserve
your tickets now for an evening of superb wine, philanthropy, and great
music from
renowned tenor saxophonist Dr. Michael Pedicin and his quartet. We're also planning an exciting charity golf event beginning at 1 p.m. Learn
more.
October 19 - What's right for me? The latest in MS treatments and resources
Join us at the Centerton Country Club and Event Center in Pittsgrove, N.J. to learn more about MS treatments and research and find out how to address some of the daily challenges of living with MS. Taking place from 9:30 a.m. to 1 p.m., the event features a presentation by Dr. Donald Barone, MS Neurologist at Rowan University, and an accompanying resource fair. Learn more.
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